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Jill Elizabeth Pitkeathley, Baroness Pitkeathley, OBE is a British Labour Party member of the House of Lords. She set up what is now Carers UK, and was its Chief Executive until 1998.
She has decades of knowledge in the sector and as a campaigner for better support for unpaid carers. Serving as the co-chair of the Carers All-Party Parliamentary Group. This experience is further heightened by her influential work advising groups within the care sector across Europe, Canada, Australia, and New Zealand.
With a clear passion for the sector and desire to support carers, it was really important to hear her view and beliefs that “we cannot go on, having people neglected in their own homes or care homes”. Saying “It is not decent and it is not what civilised society does”.
Here we share a recent interview with the Baroness, giving her opinions on the current climate in the UK for unpaid carers, and what needs to be done about it.
Government Inaction
Our first point centres around existing action and legislation on providing more support for unpaid carers. Baroness Pitkeathley raises concerns over the need for Government leadership on the issue. “This government did promise the carer’s strategy but has not actually delivered it,” she says.
Comparatively, she notes that “the last Labour Government did a national care strategy” and that it “did have an effect on the way that care was valued”. However, the undervaluing of carers in contemporary political debate reflects the difficulty of mobilising those looking after family and friends in an election year.
“On the whole, carers are so busy caring that they have so little time to lift their heads up from their caring role…even getting to the polling station to cast their vote poses a real problem for many carers.”
The scale of difficulties carers face in their day-to-day lives was particularly highlighted by our You Are Not Alone campaign and recent Caring Unseen report, which polled unpaid carers across England. This revealed that more than half felt unable to meet their own health and wellbeing needs.
“Carers’ mental and physical health is a major problem”, she says, adding that “there may be physical side effects” alongside the mental toll it puts on them, such as “a terrible lack of sleep, because of having to tend to someone during the night.”
She says that “the mental health problems are enormous because of the isolation” that can come with being an unpaid carer and denounces the failure to adequately support those undertaking this task. “Not looking after carers’ health is a very short-term policy.”
She adds that “when ignoring the health of the carer, it’s the carer who’s going to break down as well as the person who is already in need of care.” Baroness Pitkeathley draws attention to the ripple effect that this breakdown would have on increasing demand for government-funded care provision. “What is the better choice for economic and fiscal outlook?”, she asks.
Carer’s Leave Act
We then shifted focus onto the Carer’s Leave Act, the provisions of which came into force on April 6. The Act allows employees to take up to five days a year of unpaid leave to provide or arrange care for a loved one. She conveys her frustration at the scope of the measures contained within the legislation. “Of course carer’s leave should be paid,” she asserts. “You don’t think I was happy with just five days? After 40 years of campaigning?”
Nonetheless, she remains focused on pragmatic, incremental change as essential to delivering progress for carers. “You take what you can get with your campaign…you take a small step and move on from it… that’s how you have to work in a political system…you don’t get all you asked for.”
Citing further findings of the Caring Unseen report, in which it was found that just 12% of unpaid carers had a “good understanding” of the Act and its provisions, she believes it is “absolutely” a cause for concern but, unfortunately, not an unexpected finding.
“It mirrors the lack of awareness about these situations in the first place”, she warns. “The lack of recognition of the role, as well as of the opportunities and rights you have as a carer, is a long-term problem.”
When asked who should foot the bill to finance paid leave for carers, she argued that “the cost should be borne partly by the government and partly by employers.” She defends her position by reminding us “how much more [the Government] gets back in tax if you can keep carers in the workforce.”
Beyond the financial cost, she stresses the value of unpaid carers to the UK economy and the significance of having such people in the workforce. “Let’s not forget the skills agenda because carers are very skilled people. They learn not only the skills of caring but the skills of management and administration in their caring roles, all of which they can take into the workforce.”
Carer’s Allowance
As we near the end of our discussion, Baroness Pitkeathley stresses the problems with the Carer’s Allowance, a welfare benefit that carers can claim to help compensate them for their work.
“The Carer’s Allowance is a very mean benefit”, she argues. “We campaigned for years to get it…but it is the lowest of all benefits with restrictions… and many carers over the pension age, of course, can’t get it.”
However, the problems with the benefit have been made more apparent in recent weeks with revelations of thousands of unpaid carers being forced to pay fines, sometimes over £20,000, for accidentally breaking strict income rules.
For Pitkeathley, this is a turning point for the benefits system, and she is calling for fundamental change in our welfare system. “What we need is a radical overhaul of the Carer’s Allowance and indeed of all carers’ benefits.”
In closing our discussion, she returns to her point that keeping carers in the workforce is “a win-win for everybody”, including taxpayers who would otherwise have to finance the roughly £150 billion worth of care provided by family and friends.
When considering Baroness Pitkeathley’s insights, the struggle of the care sector to receive recognition in the political system is brought to the fore. At the same time, the need for further support from the Government is made clear.
There is no doubt of her dedication and commitment to the cause of unpaid carers. “I will continue campaigning for this until I die,” she concludes, something her lifetime of advocacy certainly reflects.
This interview only compounds our drive to support unpaid and family carers across the UK. We are passionate about ensuring the right support and signposting to those who are selflessly giving so much, to care for someone they love.
To find out more about the campaign click HERE.
